Ana Hornos Uriarte
Guipúzcoa, Espanya
Teaming Manager de 1 Grups
Teamer de 1 Grups
Cada mes aporta 2 € a 2 Grups
Des del 11-02-2013 ha aportat 226 €
Grups que lidera
1.171 € Recaptats
13 Teamers
Teaming Manager des de: 26/05/2016
1 euro per month to promote the cure of rare and complex epilepsies through the scientific research network Indre ApoyoDravet: 14 groups and 20 projects. These diseases describe a world of uncontrolled epileptic seizures, severe cognitive and behavioural impairment, and high degrees of disability and dependence. More than 80,000 people are affected, with a mortality rate of around 25% and costs in excess of €20,000. A research effort coordinated by Dr. Aras
Grups on participa
24.216 € Recaptats
325 Teamers
Teamer des de: 07/05/2013
The Dravet Syndrome Foundation transforms lives affected by this rare and severe childhood disease described in 1978. Dravet syndrome, a severe myoclonic epilepsy with mutations in the SCN1A gene, causes frequent seizures, developmental delays, orthopedic problems, speech difficulties, autism spectrum disorders, and growth and nutrition issues. We offer emotional support, research, and awareness efforts to bring hope. Join us and be the change!