Vanesa Pérez
Vizcaya, Espanha
Teamer de 1 Grupos
Contribui mensalmente: 1 € para 1 Grupos/projetos sociais
Desde 16-01-2013 contribuiu 977 €
Grupos de que participa
1 769 € Arrecadados
55 Teamers
Teamer desde: 04/10/2022
Non-profit association with 28 families in Spain with children with a very rare genetic mutation, SCN8A. Our children can suffer from very severe encephalopathy, with epileptic seizures that are very difficult to control and other symptoms, such as motor and/or intellectual disability, autistic traits... We need funds and with the help of Teamers and other initiatives we want to finance research projects and the dissemination of the disease among families, doctors and researchers.