Vanesa Pérez

Vizcaya,  Spain


Teamer in 1 Groups

Contributes every month: €1 to 1 Groups

Since 16-01-2013 has contributed €977

Groups supported

1

€1,769 Raised

55 Teamers

Teamer since:  04/10/2022

SCN8A Spain

Non-profit association with 28 families in Spain with children with a very rare genetic mutation, SCN8A. Our children can suffer from very severe encephalopathy, with epileptic seizures that are very difficult to control and other symptoms, such as motor and/or intellectual disability, autistic traits... We need funds and with the help of Teamers and other initiatives we want to finance research projects and the dissemination of the disease among families, doctors and researchers.