Raquel Arbosa
Madrid, Espanha
Teamer de 1 Grupos
Contribui mensalmente: 1 € para 1 Grupos/projetos sociais
Desde 10-05-2013 contribuiu 136 €
Grupos de que participa
23 593 € Arrecadados
321 Teamers
Teamer desde: 10/05/2013
The Dravet Syndrome Foundation transforms lives affected by this rare and severe childhood disease described in 1978. Dravet syndrome, a severe myoclonic epilepsy with mutations in the SCN1A gene, causes frequent seizures, developmental delays, orthopedic problems, speech difficulties, autism spectrum disorders, and growth and nutrition issues. We offer emotional support, research, and awareness efforts to bring hope. Join us and be the change!