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La petita Júlia

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Olga Barrero Solé, Teaming Manager, em 07/04/2015 em 18:13h

A raiz de varias peticiones que hemos recibido pidiendo el número de cuenta bancaria de Júlia os la facilitamos para quien quiera colaborar con otras cantidades:

Número IBAN

ES26 2100 3794 0521 0032 6152

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Laura Fernández Cotado, Teamer, em 07/04/2015 em 14:41h

Hola Olga y Xavi!!!! Con un poquito de todos seguro que lo conseguiremos!!! Mucho animo y fuerza!!! Un beso!!!!

Olga Barrero Solé, Teaming Manager, em 07/04/2015 em 18:08h

Muchas gracias Laura! Seguro que si :)

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Manuel Fernandez Suarez, Teamer, em 06/04/2015 em 22:26h

Animos chicos!!!
Lo conseguiremos.

Olga Barrero Solé, Teaming Manager, em 06/04/2015 em 23:18h

Muchas gracias! Lo que mas nps anima es ver la sonrisa de Júlia cada dia y la alegria que desprende.
Y tambien ver el gran apoyo de todos vosotros!!

Daniel Barrero, Teamer, em 06/04/2015 em 23:53h

Seguro que conseguiremos todo lo necesario para que la vida de júlia sea lo mejor posible. Es nuestra princesa!!!
Aunque amor tiene a raudales!!!!

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Ana Velasco, Teamer, em 05/04/2015 em 22:58h

Entre todos seguro que lo conseguimos!!!
Nos avisareis verdad?
Un beso muy fuerte,

Olga Barrero Solé, Teaming Manager, em 05/04/2015 em 23:23h

En cuanto empecemos os iremos informando y enseñando fotos, muchaas gracias!

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Sandra González García, Teamer, em 05/04/2015 em 03:39h

Si se puede!!!! Estamos contigo Júlia!!!!!

Olga Barrero Solé, Teaming Manager, em 05/04/2015 em 10:03h

Si!! Muchas gracias por colaborar, estamos muy contentos de que el grupo vaya creciendo!

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Olga Barrero Solé, Teaming Manager, em 03/04/2015 em 20:32h

Qué es distrofia muscular congénita por déficit total de merosina?
Se trata de una enfermedad degenerativa sin cura que afecta a toda la musculatura, impidiendo mobilidad. Uno de los problemas asociados a la enfermedad son las infecciones respiratorias graves, que pueden ser derivadas de un simple resfriado.

Olga Barrero Solé, Teaming Manager, em 03/04/2015 em 23:23h

En este link encontrareis mas información:
http://www.orpha.net/consor/cgi-bin/OC_Exp.php?Lng=ES&Expert=258

Emi González perez, Teamer, em 16/04/2015 em 13:15h

Animo y mantener la esperanza, cada día hay cosas nuevas que ayudan y Júlia es preciosa y venceremos!!!

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La petita Júlia

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