Eva Riva Triay

When Martina was 2 months old, she broke her two legs while into her mothers arms. Since then, she has suffered multiple fractures that prevent her from walking normally. Our daughter suffers from Osteogenesis Imperfecta, better known as brittle bone disease. 100% of the collected funds go to entities and projects committed to improving the quality of life of patients.

Can you imagine being afraid to hug your child? This is how the parents of Butterfly Children feel. A rare and incurable condition, which causes the skin to break with the slightest touch. DEBRA-BUTTERFLY CHILDREN CHARITY works to improve their quality of life. By joining this group you are giving them wings.

La Distrofia Muscular por déficit de colágeno VI, es una enfermedad rara y degenerativa, que afecta a los niños ya desde el nacimiento, robándoles la fuerza de todos sus músculos y poco a poco la vida. Recaudamos fondos para avanzar en la investigación y conocimiento de esta grave enfermedad, ya que debido a que es una enfermedad minoritaria, los recursos destinados a ello apenas existen, por eso somos los padres quienes tenemos que conseguirlo y con este objetivo nos levantamos todos los días.

NF2-related Schwannomatosis (SWN-NF2) is a rare genetic disease, without effective treatment, that causes the appearance of benign tumors in the nervous system. They can cause deafness, blindness, spinal cord injuries, among many other symptoms. Those affected need a treatment and for this we invite you to join the fundraising effort to allocate it to the gene therapy project being developed by the team of Dr. Eli Castellanos and Dr. Ignacio Blanco.