Teaming Manager desde: 12/03/2017
Fundación para la Investigación Científica y Educación Especial de niños con enfermedades raras, transtorno general del lenguaje y con capacidad de aprendizaje.
Teaming Manager desde: 18/10/2024
Coffin Siris syndrome (SCS) is a genetic neurodevelopmental disorder with a serious, chronic and complex disease, it entails alterations such as intellectual disability, language delays, psychomotor delay, eating difficulties, behavioral problems, epilepsy, ASD, ADHD and other varied physical pathologies, making it disabling for those who suffer from it.