Teaming Manager depuis : 12/03/2017
Fondation pour la recherche scientifique et l'éducation spéciale d'enfants atteints de maladies rares, de troubles généraux du langage et de troubles d'apprentissage.
Teaming Manager depuis : 18/10/2024
Coffin Siris syndrome (SCS) is a genetic neurodevelopmental disorder with a serious, chronic and complex disease, it entails alterations such as intellectual disability, language delays, psychomotor delay, eating difficulties, behavioral problems, epilepsy, ASD, ADHD and other varied physical pathologies, making it disabling for those who suffer from it.