Tarragona, Spain
Teaming Manager in 1 Groups
Teamer in 1 Groups
Contributes every month: €2 to 2 Groups
Since 11-08-2018 has contributed €110
Teaming Manager since: 21/09/2023
Somos la Asociación Síndrome Kleefstra España. Ofrecemos orientación a los nuevos diagnósticos,acompañamiento y apoyo a los afectados por kleefstra y sus familias. Dando visibilidad y difundiendo información sobre el síndrome. Fomentamos la investigación científica con el fin de mejorar la calidad de vida de nuestros afectados. Y para este impulso te necesitamos! Nos acompañas?
Teamer since: 31/01/2024
My 6 year old son has spastic tetraparesial PCI, permanent neurological damage, hypotonia, general developmental delay, dysphagia, fatigue, etc. He can't walk, now he has a right hip subluxation that needs to be operated on. He is on medication, extreme rigidity (spasticity) 24/7 for his entire life, I am a single parent mother without support, raising him alone since he was born, please need help, Thank you ♡