Yo Nemalínica Asociación

Madrid, Espagne


Teaming Manager de 1 Groupes

Depuis le 22-10-2018 il/elle a donné 58 €

Groupes qu'il/elle dirige

1

11 683 € récoltés

150 Teamers

Teaming Manager depuis :  22/10/2018

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es