Yo Nemalínica Asociación

Madrid, Spanien


Teaming-Manager von 1 Gruppen

Seit 22-10-2018 gespendet: 58 €

Teaming-Manager in folgenden Gruppen

1

11.683 € Gespendet

150 Teamer

Teaming-Manager seit:   22/10/2018

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es