We are a family from Spain. Our son Mateo, has a genetic mutation in the NEK8 gene, considered ultra rare, that is damaging his organs. When he was 9 months old, he had a liver transplant and when he was 3 years old, a kidney transplant. In a future he could need a heart transplant, also. There is a research team that can help him to stop his illness but they need funding (€62,000). Your contribution can save him.
El dinero recaudado irá destinado a costear los gastos directamente asociados a la enfermedad de Mateo así como a financiar una investigación del IBMB-CSIC de Barcelona para intentar conocer más de esta enfermedad e intentar frenar su progresión. La investigación tiene un coste de 62.000€/año.
Pubblicato il
24/03/2022
Pagina Web
http://www.asociacionunavidaparamateo.com
Data di pubblicazione
24/03/2022
Creato da
Asociación Una Vida Para Mateo
Tipo di gruppo
ONG
Settore:
Aiuto ai pazienti
Persone con disabilità
Ricerca
Paese:
Spagna
Regione:
Madrid
Teamer
Ieri 20:05 h
Por muchos años poder ayudarte Mateo! Tu sonrisa lo es todo
Leggi di più Leggi meno
Guarda il commento intero
0 Commenti
Commenta