We are a family from Spain. Our son Mateo, has a genetic mutation in the NEK8 gene, considered ultra rare, that is damaging his organs. When he was 9 months old, he had a liver transplant and when he was 3 years old, a kidney transplant. In a future he could need a heart transplant, also. There is a research team that can help him to stop his illness but they need funding (€62,000). Your contribution can save him.
El dinero recaudado irá destinado a costear los gastos directamente asociados a la enfermedad de Mateo así como a financiar una investigación del IBMB-CSIC de Barcelona para intentar conocer más de esta enfermedad e intentar frenar su progresión. La investigación tiene un coste de 62.000€/año.
Posted on
24/03/2022
Imposible decirte que no Mateo. Ojalá encuentren más cosas para investigar y ayudar
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Publication date
24/03/2022
Created by
Asociación Una Vida Para Mateo
Type of Group
NGO
Field
Disabilities
Patient care
Research
Country
Spain
Region
Madrid
Copy paste the URL
https://www.teaming.net/unavidaparamateo
Teamer
Yesterday 20:05 h
Por muchos años poder ayudarte Mateo! Tu sonrisa lo es todo
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