Sira Romero Diaz

Sira Romero Diaz

Barcelona, Spanien


Teamer in 1 Gruppen

Spendet jeden Monat: 1 € für 1 Gruppen

Seit 14-07-2023 gespendet: 16 €

Mitglied in folgenden Gruppen

1

11.683 € Gespendet

150 Teamer

Teamer seit:  14/07/2023

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es