Baleares (Illes), Espanya
Teamer de 3 Grups
Des del 16-09-2014 ha aportat 119 €
Teamer des de: 16/09/2014
Nuestro lema es Niños contra la Laminopatía, en concreto del tipo L-CMD. Recaudamos fondos para la investigación de esta grave enfermedad, rara entre las raras, con el sueño de encontrar curación a la misma. No se conocen más de 50 ó 60 casos registrados en el mundo, lo que hace que ni los laboratorios farmacéuticos ni los estados investiguen esta enfermedad, todo debemos conseguirlo los padres con fondos privados. Es una enfermedad degenerativa que en pocos años tiene un desenlace fatal.
Teamer des de: 22/01/2015
We contribute to fund the mission of the Richi Childhood Cancer Foundation so that all children and adolescents with cancer have a better prognosis and quality of life. More information: http://www.richifoundation.org
Teamer des de: 15/03/2018
Paliaclinic Foundation works in the field of end of life. We accompany and support seriously ill people and their families so that they can face, especially at home, such a difficult time that affects them physically and emotionally, and in which all help is little. For 15 years, the foundation has improved the well-being of patients and families thanks to the work of its team, the commitment of volunteers and the solidarity and support of collaborating people and entities.