Pilar Grande Seijas
A Coruña, Espanha
Teaming Manager de 1 Grupos
Contribui mensalmente: 1 € para 1 Grupos/projetos sociais
Desde 15-01-2015 contribuiu 193 €
Grupos de que é líder
6 527 € Arrecadados
83 Teamers
Teaming Manager desde: 16/08/2018
Phelan-McDermid Syndrome is a genetic condition considered a rare disease. Those affected suffer a developmental delay in multiple areas, especially in the ability to speak. Our mission is to improve the quality of life of people affected by the Syndrome through research, support to families and awareness. For more information you can consult our website www.22q13.org.es Visit us on our social networks! @sindromephelan