Pilar Grande Seijas

A Coruña, Spagna


Teaming Manager di 1 Gruppi

Dona ogni mese: 1 € a 1 Gruppi

Da 15-01-2015 ha contribuito 193 €

Gruppi che amministra

1

6.527 € Totale raccolto

83 Teamer

Teaming Manager dal:   16/08/2018

Asociación Síndrome Phelan-McDermid

Phelan-McDermid Syndrome is a genetic condition considered a rare disease. Those affected suffer a developmental delay in multiple areas, especially in the ability to speak. Our mission is to improve the quality of life of people affected by the Syndrome through research, support to families and awareness. For more information you can consult our website www.22q13.org.es Visit us on our social networks! @sindromephelan