Pilar Grande Seijas

A Coruña, Espagne


Teaming Manager de 1 Groupes

Chaque mois il/elle apporte 1 € à 1 Groupes

Depuis le 15-01-2015 il/elle a donné 193 €

Groupes qu'il/elle dirige

1

6 527 € récoltés

83 Teamers

Teaming Manager depuis :  16/08/2018

Asociación Síndrome Phelan-McDermid

Phelan-McDermid Syndrome is a genetic condition considered a rare disease. Those affected suffer a developmental delay in multiple areas, especially in the ability to speak. Our mission is to improve the quality of life of people affected by the Syndrome through research, support to families and awareness. For more information you can consult our website www.22q13.org.es Visit us on our social networks! @sindromephelan