Pilar Grande Seijas

A Coruña, Espanya


Teaming Manager de 1 Grups

Cada mes aporta 1 € a 1 Grups

Des del 15-01-2015 ha aportat 193 €

Grups que lidera

1

6.527 € Recaptats

83 Teamers

Teaming Manager des de:  16/08/2018

Asociación Síndrome Phelan-McDermid

Phelan-McDermid Syndrome is a genetic condition considered a rare disease. Those affected suffer a developmental delay in multiple areas, especially in the ability to speak. Our mission is to improve the quality of life of people affected by the Syndrome through research, support to families and awareness. For more information you can consult our website www.22q13.org.es Visit us on our social networks! @sindromephelan