Moving Forward is a project run by the European Huntington Association that aims to provide high quality information and tailored support to the young generations of families impacted by Huntington's Disease.
The Moving Forward project was created to provide support and information to the young generations from families impacted by HD. Specifically, this project wants to bring people at risk of HD, people who tested positive and people who tested negative closer to the patient organizations, clinics and research centres. The funds raised will support tailored actions to serve these groups, namely: online psychological support services; online sessions with the topic “One Disease, Multiple Stories”; face-to-face meetings dedicated to key topics (e.g., genetic testing, research); social media campaigns (e.g., lifestyle tips, research for non-researchers); updated and reliable information about HD available in10 languages (https://ehamovingforward.org/). Moving Forward is currently operating in Spain, Norway, Belgium (Flanders and Wallonia), Sweden, France, Italy and The Netherlands.
Publicado em
06/06/2024
Página web:
https://ehamovingforward.org/
Data de publicação
06/06/2024
Criado por
European Huntington Association
Tipo de Grupo
ONG
Âmbito
Cooperação internacional
Cuidados e tratamentos de saúde
Famílias
País
Bélgica