Moving Forward is a project run by the European Huntington Association that aims to provide high quality information and tailored support to the young generations of families impacted by Huntington's Disease.
The Moving Forward project was created to provide support and information to the young generations from families impacted by HD. Specifically, this project wants to bring people at risk of HD, people who tested positive and people who tested negative closer to the patient organizations, clinics and research centres. The funds raised will support tailored actions to serve these groups, namely: online psychological support services; online sessions with the topic “One Disease, Multiple Stories”; face-to-face meetings dedicated to key topics (e.g., genetic testing, research); social media campaigns (e.g., lifestyle tips, research for non-researchers); updated and reliable information about HD available in10 languages (https://ehamovingforward.org/). Moving Forward is currently operating in Spain, Norway, Belgium (Flanders and Wallonia), Sweden, France, Italy and The Netherlands.
Publié le
06/06/2024
Page Web :
https://ehamovingforward.org/
Date de publication
06/06/2024
Créé par
European Huntington Association
Type de Groupe
ONG
Domaine
Aide à des malades
Coopération internationale
Familles
Pays
Belgique