Moving Forward is a project run by the European Huntington Association that aims to provide high quality information and tailored support to the young generations of families impacted by Huntington's Disease.
The Moving Forward project was created to provide support and information to the young generations from families impacted by HD. Specifically, this project wants to bring people at risk of HD, people who tested positive and people who tested negative closer to the patient organizations, clinics and research centres. The funds raised will support tailored actions to serve these groups, namely: online psychological support services; online sessions with the topic “One Disease, Multiple Stories”; face-to-face meetings dedicated to key topics (e.g., genetic testing, research); social media campaigns (e.g., lifestyle tips, research for non-researchers); updated and reliable information about HD available in10 languages (https://ehamovingforward.org/). Moving Forward is currently operating in Spain, Norway, Belgium (Flanders and Wallonia), Sweden, France, Italy and The Netherlands.
Posted on
06/06/2024
Website:
https://ehamovingforward.org/
Publication date
06/06/2024
Created by
European Huntington Association
Type of Group
NGO
Field
Families
International Cooperation
Patient care
Country
Belgium