Teamer seit: 15/06/2023
Omaira is an 8 year old girl diagnosed shortly after birth with a rare and rare disease, Congenital Muscular Dystrophy due to Merosine Deficiency. Family and friends have created this group, to be able to cover the needs derived from your illness, in order to improve your quality of life. It needs rehabilitation and adapted devices that the S.S cannot cover. He is awaiting hip surgery and a lot of subsequent rehabilitation. Thank you for collaborating.