Julia Piniella Martín

Valencia, Spain


Teaming Manager in 1 Groups

Teamer in 1 Groups

Contributes every month: €2 to 2 Groups

Since 12-07-2016 has contributed €261

Groups led

1

€3,749 Raised

59 Teamers

Teaming Manager since:   18/03/2019

Fundación AHUCE Osteogénesis Imperfecta

AHUCE Foundation (www.fundacionahuce.org) works to improve the quality of life of people with Osteogenesis Imperfecta (OI) through research. OI is a congenital pathology characterized by an inadequate formation of bone tissue. People's bones are very fragile. There are other manifestations, such as short stature, hyperlaxity, respiratory problems, cardiovascular problems, weak musculature, hearing loss, vision problems, scoliosis and chronic pain.


Groups supported

1

€57,191 Raised

638 Teamers

Teamer since:  21/08/2016

Our fight against brittle bone disease

When Martina was 2 months old, she broke her two legs while into her mothers arms. Since then, she has suffered multiple fractures that prevent her from walking normally. Our daughter suffers from Osteogenesis Imperfecta, better known as brittle bone disease. 100% of the collected funds go to entities and projects committed to improving the quality of life of patients.