Coffin Siris syndrome (SCS) is a genetic neurodevelopmental disorder with a serious, chronic and complex disease, it entails alterations such as intellectual disability, language delays, psychomotor delay, eating difficulties, behavioral problems, epilepsy, ASD, ADHD and other varied physical pathologies, making it disabling for those who suffer from it.
Los fondos recaudados serán destinados a la ampliación de terapias e investigación de la enfermedad, ayuda a nuestros seres queridos a tener una mejor calidad de vida y un futuro mejor.
Publicado em
21/11/2024
Data de publicação
18/10/2024
Tipo de Grupo
Outros
Âmbito
Incapacidades
País
Espanha
Região
Madrid
Copia e cola o URL
https://www.teaming.net/asociacionespanolacoffinsiris
